The first email came in August. It was that time again. Time to ramp up the planning for the 3rd Annual Los Angeles Autoimmune Walk. You'd think after two rodeos, we'd be old hat at this by now since we've had pretty much the same core coordinating team from day one. But let me just tell you, putting on an event at a public park, for hundreds of people, coordinating dozens of volunteers, trying to get sponsorships and donations, feeding people, entertaining people, keeping people safe...it's a lot. A LOT. And this is a side gig for everyone involved.
And so we had meetings. Weekly conference calls. Emails and texts that shot back and forth daily. Spreadsheets and documents and forms and social media. And we all just did it. Which is amazing. Because people who donate their time and their energy are hard to come by and they are SPECIAL.
And then Saturday dawned. Sunny and perfectly warm. The grass was green, the leaves crunchy. The trucks arrived and we set up. The volunteers arrived. It all fell into place. It was all running just as it needed to. So much so that when I saw another core coordinator, we'd look at each other and wonder out loud, are we missing something? But we weren't.
The technical and practical had been taken care of. I was wondering around answering questions and doing whatever needed to be done. And then I burst into tears...
Registration was underway, we were getting ready to hear from our first speaker of the afternoon, Haley Ramm. Haley is one of the co-founders of the Walk, along with the rest of her family. Her mother, Barbara, suffers from several debilitating autoimmune diseases. I've heard Haley speak before and she's eloquent and emotional and always has a hopeful message. I headed toward the stage area. But as I did, I noticed a mother and daughter I'd seen earlier by the bead table.
The mother was ushering her young daughter, who was maybe six, toward the stage area as well. And as she did, she said, "We are going to go hear this young girl speak. Her mommy has the same disease I do."
And I burst into tears.
Because all the rest doesn't matter. All the frustration and paperwork and conference calls while dinner was waiting doesn't matter. All the permits and people who didn't show up and the wrong color this and the too much of that doesn't matter.
That little girl's mom is sick.
Haley's mom is sick.
I am sick.
And that's what brought us all to Culver City Park on Saturday. Some of us as the sun was just warming up the day. Some of us after lunch. All of us to raise money, to raise awareness, to be together. To smile and inspire and cheer and thank and love.
I wound my way through the crowds and found my backpack and a Kleenex. I blew my nose and wiped my eyes and headed back over to hear Haley speak. And as she did, I burst into tears again.
Everyone in that park that day was there because of Haley. Because of Haley's mom Barbara. Because of that little girl. Because of that little girl's mom. Because of me. Because of all of us.
People in wheelchairs. People with shaved heads. People with visible signs of their diseases. People without visible signs of their diseases. But also? SO MANY LOVED ONES. SO MANY FRIENDS. How awesome is that?
As of today, Monday, we've raised over $40,000 for research with the 2017 Walk. That is also so awesome. That brings more tears. But it also brings joy. Because on the chains we carried during the walk (and that will go back to AARDA headquarters in Detroit to make their way to Washington D.C.) was listed the names of everyone we walked for, everyone fighting autoimmune disease. My name was somewhere in that chain as well. And so was Aunt Gloria's name. Because even though one year ago on Saturday we lost Gloria to her autoimmune disease, we still fight. We fight for everyone who fought before us, everyone who will come after us. Because until there are cures, we are not finished. We cry. We love. We walk.
1 comment:
Dorothy Copado Hatch
And now I have the tears......
Moni Wood
Me too
Megan J Wilson
Powerful.
Heidi Darrah
ðŸ˜ðŸ˜ðŸ˜˜
Barbara Ramm
So great! Thank you!
Barbara posted it to her wall with this: THIS is what our Autoimmune Walk is all about. Sarah Knapp making me cry happy tears this morning. If you want to know why this has been so important to me over the past three years, read on...
Leslye Winkelman Lyons
Wow, sad, loving tears from me. Congratulations, Barbara Ramm, to you, Haley Ramm and the team. Love you much.
Barbara Ramm
It has been a journey and one that ends now. My last walk but I know it will go on and be wonderful!!
Leslye Winkelman Lyons
You've trained a wonderful, powerful core of folks to carry on without you. Exactly what a founder should do.
Haley Ramm
Okay why did I read this in line to get a coffee... Sarah Knapp...💖💖💖😠so thankful for you!
Shari Ramm Breckenridge
You are a wonderful writer! That moved me to tears. Congratulations on #3. May you forever be courageous in your journey.
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