Thursday, May 31, 2018

Take Care of Yourself, Please

The 1st selfie
Four weeks ago this morning I drove to Glendale Adventist Hospital while the traffic was still relatively light (there is no such thing as no traffic in Los Angeles, I've been on the roads at all hours and there is always, always, always, traffic) and the sun was still burning the grey out of the sky. I parked in a nearly empty parking garage and made my way to the imaging suite in the hospital. There was one other woman in the waiting room and we both were there for our yearly mammograms. She was getting her fifteenth or something, I was getting my second. We were both done before seven-thirty and as we rode the elevator up from the basement she commented that it's good to get that done for another year. I agreed and we parted ways to start the remainder of our Thursdays.

I posted my cute curly-haired selfie from the dressing room just before I went in to get my mammogram and I reminded everyone to practice self-care and get tested when you're supposed to! Done for another year I thought. 

And then five days later I answered the phone on my drive into Hollywood on a Tuesday morning. I was sitting in traffic and was listening to a podcast and figured it would be a robo call when I clicked the speakerphone button. But it was a nurse from my gynecologist's office. 

I wasn't one hundred percent sure what transpired in the next eighty seconds. I heard that there was something wrong with my mammogram, something amiss. I heard that I needed more tests. I heard that she'd deal with insurance and get back to me. And then she hung up. My brain went into overdrive.

I know from my experience with blood clots and my autoimmune disease that I should never Google my own health symptoms. And I didn't. But I sure wanted to. 

What I ended up needing was a bilateral diagnostic mammogram and ultrasound of both breasts. It took a few days but the insurance paperwork went through and the tests were scheduled. The first available slot open was last Wednesday, the only appointment they had until later in June. And of course this was the one day I had promised to spend with Angela at school scooping ice cream for her 2000 students to celebrate the end of their standardized testing. 

Needless to say, neither of us scooped ice cream last Wednesday. Instead Angela took the day off and we spent the morning running errands, getting regular blood tests (it's a thing for me and her doctor wanted to check her out and this seemed like as good as a day as any to do it), going to the post office, and eating one of the best breakfasts I've ever had (no, seriously -- we went to Porto's in Glendale and had omelettes, which were fine, but the avocado salad and potatoes they serve with the omelettes? Pure bliss, every bite). Then we made our way back to Glendale Adventist Hospital. We searched the busy parking garage for a spot and then made our way back to the imaging suite. 

And within forty-five minutes the tests were complete. And I took another selfie. But this one I didn't post. I didn't have cute curly hair and I wasn't quite as confident with my smile this time. This one I took just for me. Because this one might have marked a completely different kind of day...

And then we waited. We waited and I told the small handful of people in my life I'd told about the tests that I still had no ideas. And we waited. And it's really the waiting that might kill us in the end, right? Because that's when we go to dark, scary places in our minds that Google could never really compete with...

And then this morning it was eight days and still no news. I felt completely powerless. Should I think about the scary things that might soon befall my life? Or should I pretend nothing has changed at all? I needed answers. I needed power. So I called the doctor's office and I was told a nurse would call me with the results. And so I waited some more. And I am so blessed to have amazing people in my corner. People who will talk to me for hours on end to distract me, people who send emails and Facebook messages to check in, people who text silly bitmojis and news stories that keep my mind occupied, even if they have no idea what's going on at that particular moment. And then I got a call shortly after noon today, four weeks from the day of that first mammogram -- everything is fine. 

The 2nd selfie
I am not sure what exactly the nurse said. I heard fine and okay and I think she quickly sensed I was on the verge of losing it because she said something like are you okay and I answered yes through a sob in my throat and we hung up. And I made my calls and sent my messages and sobbed with relief. Because not everyone gets this particular call. 

I know not everyone has the opportunity to have this level of care in the first place. I've had three mammograms in thirteen months. And I am fine. I am sobbing the happiest of tears. But I know women who can't get even one mammogram. Or can't get that second one. Or who don't want to go. Or who are too afraid of what it will mean or what it will feel like. Or what will come next. And trust me, I get that. All of it. And I know there are some people who wouldn't follow up with their doctor's office. They'd assume no news is good news. And sometimes it is. Again, the happiest of sobs! But sometimes it isn't. And KNOWLEDGE is POWER. 

In the past three years one of the biggest lessons I've learned is to be my own advocate. And when I cannot be my own advocate to reach out for help. Because there are always people who will help. But mostly, I have to monitor my own health care. I have to keep track of my own tests and collect all my own paperwork and schedule my own appointments and follow up with busy receptionists and keep copies of everything and write in my health journal in a Word file I keep on my computer and on my phone because you will always need that piece of information you didn't think you would need. 

And that's what I hope to share with others -- Go for the test the doctor recommends. Go for that follow-up appointment. Get that prescription filled. Confide in a person or two or three. Share your fears. Share your joys. Embrace the reality that this is your one life. Your one body. No one else can take care of it for you. No one else will care as much as you do about your own health. And you are loved and we all need you in tip-top shape. I tell you, it's when I'm at my darkest, in those scary places Google will never even imagine, that I am constantly reminded how much I am loved. I'll get a smiley face emoji from a friend via text. I'll get an extra hard hug from someone. I'll hear a song sung on the sidewalk outside of Homeless Lunch from a woman who shouted, "I love you!" as she skipped away this week. I'll hear the relief in a dear friend's voice when she learns that my test results are okay, not her test results, but mine. To know that my life is so intertwined with others lives reminds me of how much I have to take care of. 

There will be more health scares in my life, this is something I rationally realize. I will get sick again. I will have more panic attacks. I will lose people close to me from health problems that could or could not have been prevented. I know this. Life is hard and scary and at the end we all die. I've had forty years on this earth to come to terms with this and on the other hand, I know I never will. 

Today I will know that I am okay. That for today I am healthy and I am smiling because I just can't stop even though I am crying too. I heard voices of loved ones today. I get to write something that I made up today. I watched the Tigers beat the Angels today. I am not just okay but I am great. And I hope and pray everyone else in my life is too. And if not, take care of yourself. Please. For you. For me. For all of us. 

2 comments:

Anonymous said...

Betsy Hunsley-Hunt So glad you’re ok!
Patricia Gries I read your blog and you so eloquently explained the horror of waiting and just how much you hear. Glad you have a loving sister and so much support.
Lynn Carusi Good to hear that all is well
Kerri L. Knapp I am so glad you received good news today. I have had to have additional looks and ultrasounds after 3 different mammograms, 3 different years. It has not gotten less scary when I received that call for extra tests. My mind goes to bad places. Each tim...See More
Sue Hardy Douglas Sarah, I'm so happy that you received good news today. In reading your blog, I find we are similar in many ways. We are our own Advocates, and we have a great team of supporters by our side. We are blessed!
Tammy Lopez Medlock Relieved, but you took me through the experience of being you. Self-care and listening to a professional, I learned this reading your blog, and I’m old! Thanks for this. ❤️
Christina MacDonald Knapp
🤗❤️
Janet Adams I understand completely. Last November I got a call after my mammogram that said the Dr want to do another one but it had to be digital. Had that one in December. Was told I now need to go every six months because of calcium deposits. Just hope my insurance pays for this. Next appt in two weeks. So glad you are fine!!!!
Ryan Hoog (me - you were my extra hard hug!) Awe! What a powerful story. Hope my hugs aren't too hard. Hahaha (me - NEVER)

Anonymous said...

Sahara Ford-Davis So glad you are okay!!!